Thursday, April 11, 2019

Can We Kill the Stigma?



 by Beth Saadati

It’s only two steps. I remind myself this is probably nothing—the odds are ever in my favor!—still, I tremble inside as I climb.

I lie down on the hard table, a pillow beneath my head, a pillow beneath my feet, and turn my head to the side, away from the bustle and noise. A painted scene—beauty to decorate the sterile?—hangs on the wall. Inches away from my face, a CD boom box rests on a ledge. From it, falsely soothing music begins to play.

“We want to make this as comfortable as possible,” says a nurse I can’t see. “Almost like a spa. Don’t hesitate to ask if there’s anything you need.” She’s kind, quite kind, and sincere, but…a spa? Despite the heated blanket draped over me and the wedge pillow cocooned in one arm, it’s not. It’s terrifyingly not.

With no wasted time, the process starts—the prep to be done before the doctor comes. I close my eyes. I try to relax. I make a respectable effort to push all that’s vulnerable, awkward, and exposed out of my mind. It works, somewhat, until Dr. Chaney arrives.

“On the count of three, you’ll feel the needle.” I’m genuinely afraid of the six-letter word (so afraid I chose three natural childbirths over subjecting my spine to that wicked epidural) but I remain quiet. I try hard to be brave.

His voice, gentle and soothing, cuts through droning melodies as he talks me through each procedure, as he extricates tissue that must be removed.

“In three more counts, you’ll hear a pop.” I do—and pray that the sprayed lidocaine that’s numbed one side of my body continues to work. My forearm grips the wedge. My thumb fingers my grandma’s wedding ring that adorns my right hand as I remember my role model, the woman I looked up to. For the first time I realize, when I was in college, how little I really knew about courage, about life, about the cancer surgeries she endured. And I wonder, if need be, whether I’ll be strong enough to walk in her shoes.

“Next you’ll hear something that sounds like a sewing machine. You shouldn’t feel anything, though.” I lie still, feigning deep sleep, and think of a friend who, years earlier, withstood far more than this—as well as others who’ve received unwanted diagnoses and undesired treatments, yet chose to suffer whatever they had to in order to live.

I’m x-rayed and magnetized, radiated and injected. (For the record, I fully expect to emerge from Room 2 a female version of Captain America.) With every picture taken, however, a nurse commands something simple: “Stop your breath.” I obey, but it hurts to remember that, once upon a time, my daughter permanently did. Again and again I hear the words, and I am silently wrecked. My mind stills on a single-thought focus: God, please be here. I don’t want to be alone in this.

Then it’s over. The doctor leaves; he’s extracted what he needs. The nurses apply pressure, bandage the spliced skin, pack the wound in ice. Opening my eyes, I view the entirety of the pretty, framed scene as the table lowers. I descend the pair of black steps and mentally prepare for the torturous two-day wait.

Thursday finally arrives—the day anxiety can at last be put to rest. After all, I’m still (relatively) young, healthy, void of foreboding warning signs. And, the facts are for me: eighty percent of biopsies are benign.

A nurse ushers my husband and me to a special room, where a radiologist I don’t know enters. As I stand to shake hands, he greets me with soft eyes and forces a slight smile. He introduces his resident doctor, apologizes that it’s under these circumstances we first meet, and instructs me to sit.

There’s no need to say more.

The scenario is too familiar; past words forever engraved on my mind reemerge: “You need to sit down,” a friend with troubled eyes had said on a cold January night. “Your daughter is dead. It appears she took her own life.”

Staring The Unexpected in the face once again, I receive the news. Eighty percent of biopsies may be benign, but I have a new storm to weather, an invisible enemy to fight.

Because those odds aren’t mine.

* * *

Although I prefer to process privately, I tell a few friends, plus some people who will need to know. One newly-befriended couple sends a long, thoughtful email that touches my heart at its core:

“We are so sorry to hear about your diagnosis. There is no scarier word in the English language. We will be praying fervently for you and your family…”

The second sentence stops me short. Although doctors caught my cancer early, the past three weeks I’ve battled (and succumbed to) an insane amount of fear. Nevertheless, as scary as the C word is, there’s one I find even scarier—the other unforeseen storm I’ve weathered. It starts with an S.

And I wonder…what if the word “suicide” doesn’t have to induce fear? What if the following five answers from cancer can help us kill the stigma surrounding suicidal thoughts and depression and bring forth life?




1. Cancer Isn’t Anyone’s Fault.

The statement on the American Cancer Society website caught my eye: “Cancer is not your fault, and there’s almost never a way to find out what caused it. Instead, focus on taking good care of yourself now.” Nevertheless, I’ve obsessed over every non-genetic thing I could have done wrong to “bring this on.” Should I have exercised more consistently? Drunk asparagus juice? Used Essential Oils? Consumed only all-organic food? Prayed and believed with greater faith? I don’t know why my cells are misbehaving, but, whatever the reason, cancer is ultimately an illness I don’t want and never asked for.

Left untended, however, the cancer will most likely grow. I can’t “just get over it,” “just be happy,” or “just think positive thoughts and move on.” Depression and suicidal thoughts should be respected the same. Loved ones who struggle with either illness aren’t to blame.

2. Cancer Can Be Diagnosed and Treated.

Yes, it comes with a physical and financial cost. Yes, there are side-effects. Yes, it’s inconvenient. Yes, there’s a margin of guesswork involved. But x-rays, MRIs, ultrasounds, surgery, and pathology reports can paint a fairly accurate picture of what’s going on regarding type, stage, grade, and a host of additional terms I won’t bother to name. Once the medical team assesses what they’re working with, they can take proactive steps to try to treat it. Together, we can do something about this.

When it comes to depression and suicidal thoughts, however, people often hesitate to seek medical help. According to the National Institute of Mental Health, “NIMH-sponsored studies estimate that 6 percent of 9- to 17-year-olds in the U.S. and almost 10 percent of American adults, or about 19 million people age 18 and older, experience some form of depression every year. Although available therapies alleviate symptoms in over 80 percent of those treated, less than half of people with depression get the help they need.It’s time to end the unfair mental health stigma and encourage diagnosis and treatment.

3. Cancer Isn’t a Silent Topic Shrouded in Shame.

Although I doubt I’ll be littering social media with my medical reports, cancer evokes no pointed fingers of shame. Compassion? Yep. Concern? You bet. I’m free to share the struggle with the world if I feel so inclined. The big C word isn’t something my inner voice nudges me to hide.

Society, on the other hand, discourages open disclosure of depression or suicidal thoughts. Perhaps that’s part of the reason 99 percent of all suicides are “hidden”—because pain is preferable to shame. Everything about that is wrong. We’ve got to start the conversation, break the silence that surrounds depression, and cheer on those who courageously speak up.

4. Cancer Doesn’t Define Anyone.

Some of my cells are over-enthusiastically dividing, but they don’t make up the sum of who I am (pun most certainly intended). There’s so much more to me than my body’s confusion that’s about to be kicked in the dupa. (Note: “Dupa” is a term I learned from my spunky four foot, eleven inch grandma in Cleveland, Ohio…you didn’t really think I’d use the three-letter word now, did you?)

The same is true for those whose brains contain decreased levels of serotonin, dopamine, and norepinephrine neurotransmitters that contribute to depression. We ought to be mature enough to see who, at the heart, people are—not just what they must fight to overcome.

5. Cancer Has Two Companions: Help and Hope.

As soon as my pathology report confirmed the presence of cancer, Bon Secours Hospital System assigned a navigator to the case, put a precise plan into action, and offered “free” down-the-road assistance that includes nutritional counseling, genetic testing, and support group participation. Granted, there’s no guarantee the eradicated cancer won’t someday return, but I plan to latch onto all the hope and help there is to decrease the possibility cancer will come back and rear its ugly head.

Unbeknownst to the multitudes, depression and suicidal thinking walk hand-in-hand with the same two friends. There’s so much help available. And even more hope to defeat the lies that can antagonize our minds.  

It’s time to take the steps, despite the fear of journeying into the unknown. Let’s learn from cancer, kill suicide’s stigma and, together, fight to stay alive.



Beth is a high school English teacher, wife, and mom to two spectacular teens. She likes to spend time with family and friends, indulge in a Chicago-style mushroom pizza or homemade blackberry pie, and, with shameful inconsistency, lace up her Nikes for a long-distance run. In the aftermath of her beloved firstborn’s suicide, she shares story at bethsaadati.com to offer insight, understanding, and hope—with those who weather the storms of suicidal thoughts and suicide loss…and with those who simply know how bittersweet life can sometimes be.

12 comments:

  1. Brilliant, brave and beautiful in all its suffering. Standing with you.

    ReplyDelete
    Replies
    1. You are such a faithful friend, Marcia. Thank you.

      Delete
  2. Holding you in love and prayer, and always know I will be there! Love you, my friend!

    ReplyDelete
  3. Beth, I’m reading your post. My heart hurts for you to go through yet another painful journey. I also grasp for how to encourage. You have others to look to who have been there. Your grandmother, Anne Graham Lotz, Joni E. Tada and just yesterday I shared the post of Dr. Michelle Bengtson talk in Dallas with Professional Women this week. You may know her. I found it inspiring. She talks about faith, depression, suicide and cancer. I’ve known of her but not all that she had been through. I hope you get to listen. Michelle and I connected finally and I’m praying for healing for both of you as you battle this. My husband who oversees the cancer center as relating to chemo drugs will tell you that breast cancer is usually easier to beat than most cancers. I have two sisters who survived breast cancer. So I’m praying for your healing, strength and that you have a team of friends and family to come alongside for your support locally. And you will have so many friends around the country lifting you up in prayer. You are an amazing caring young woman and I love you as a sister in Christ. 💗

    ReplyDelete
    Replies
    1. What a beautiful comment, Daphne. Thank you for taking the time to share here. I hadn't heard of Dr. Michelle; I watched the video you mentioned and read some posts on her website. Her testimony is powerful. It spoke to me. Also, I didn't know Anne Graham Lotz had been impacted by cancer. I appreciate you telling me.

      Thanks, also, for the encouraging words and for your intercession. There is much hope and help for overcoming breast cancer. I'm thankful for the advances that have been made, and even more thankful that, whatever lies ahead, God won't forsake me as I walk through this.

      I love you. Thanks for being a friend.

      Delete
  4. ❤️ Beth, you know I’m here for you. ❤️ I appreciate you being there for me. ❤️

    ReplyDelete
    Replies
    1. Yes, I do. :) And, I'm grateful. Thank you, Mary.

      Delete
  5. Praying for you in this new, wretched journey. I hope that someone is helped by your brave, wise words. It's time to end the stigma of suicide and mental illness!

    ReplyDelete
    Replies
    1. I agree, Laura; the stigma needs to end. Thanks so much for your kind and encouraging words here.

      Delete
  6. Hi, Beth. I lost my husband to cancer 9 years ago. The pain is with me all the time. I try always to remember the good, fun, and our family life. I decided some time ago to help others. I felt Doug would like that. I’m a GAL in Florida and have two children I am an advocate for. When my husband was very ill, my friends the Summers had their pastor come to see us. He was so supportive and caring , I had us become members of a Methodist church nearby. They have become like family. I have completed Celebrate Recovery leadership training and we meet once a week. It really helped after losing my only sister to recurrent Breast Cancer. I’m happy you have been able to take a direction to help others. You are an inspiration for us. Thank you for sharing. Your family are in my prayers. Taryn is a high School teacher of Foreign languages and gave me your link. Love Karen Butenschoen

    ReplyDelete
    Replies
    1. Karen, words can't explain how good it is to hear from you. I did a double-take when I saw your name; it brought back many good memories. :) Thank you for taking a moment to read and write. I'm touched that you would.

      I'm very sorry to hear about Doug and your sister and the deep holes those losses have left. From my Jenna's death, I know the daily ache of absence and what it's like to walk through a life that's now different than we thought it would be. I love hearing that you're reaching out to others and allowing God to birth good from the pain, though. Your example encourages me.

      So Taryn teaches high school? I imagine she has impacted a lot of lives. Please tell Brian, Kevin, and Taryn I say hello. Also, if you see this and want to catch up more, feel free to email (bethsaadati02@gmail.com).

      Hugs to you, friend. May God surround you with his peace and close presence as you carry on.

      Delete